Long Term Care Resources

Links to information sources about LTC issues.

Index: Examples of Programs in Other States / Focus on Michigan /Assisted Living/Person Centered Planning / Home and Community Based Services / Single Point of Entry / Long Term Care Insurance / Quality Improvement / Money Follows the Person/ Workforce Development /Chronic and Preventive Care/ Commentary

Overview

Article/Web Page	Source / Sponsoring Organization
Recent Growth in Medicaid Home and Community-Based Service Waivers	Kaiser Family Foundation
The Supreme Court's Olmstead Decision: Five Years Later Medicaid and Long Term Care	same
Long Term Care: Federal Oversight of Growing Medicaid Home and Community-Based Waivers Should be Strengthened	General Accounting Office
Long-Term Care for the Elderly with Disabilities: Current Policy, Emerging Trends, and Implications for the Twenty-First Century	Milbank Memorial Fund
Longterm and Chronic Care Resources	National Academy for State Health Policy
California Center for Long Term Care Integration
LTC Issue Briefs	Academy Health and Commonwealth Fund Building Bridges Project
Caregivers and long-term care needs in the 21st century: Will public policy meet the challenge?	Georgetown University Long-Term Care Financing Project
Medicaid and an Aging Population	same
Who Pays for Long-Term Care?	same
Long-Term Care – Finally on its Way to the Altar?	Changes in Health Care Financing and Organization (HCFO) initiative

Examples of Programs in Other States

Article/Web Page
Source / Sponsoring Organization

Promising Practices in Long Term Care Systems Reform: Wisconsin Family Care U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services Disabled and Elderly Health Programs Division

Promising Practices in Long Term Care Systems Reform: Oregon’s Home and Community Based Services System same

Promising Practices in Long Term Care Systems Reform: Vermont’s Home and Community Based Service System same

Indiana Long Term Care Insurance Program Bureau of Aging and In-Home Services (Indiana)

State Long-Term Care:
Recent Developments and Policy Directions National Conference of State Legislatures

Progress Report: Quality of Life Evaluation of People with Developmental DisabilitiesMoving from Developmental Centers into the Community (Year 1); (Year 3);(California) Center for Outcome Analysis (James Conroy)

Comparison of Health Care Services in a Congregate Care Setting and in Supported Living Arrangements in Oklahoma same

Executive Summary The Coffelt Longitudinal Study: The Results of Four Years of Movement From Institution to Community Final Report (Number 19) Of the 5-Year Coffelt Quality Tracking Project California Department of Developmental Services same

Initial Outcomes of Community Placement For the People Who Moved From Stockley Center (Delaware) same

New York State Partnership for Long Term Care

Ohio Commission to Reform Medicaid

Focus on Michigan

Article/Web Page	Source / Sponsoring Organization
State Long Term Care: Recent Developments and Policy Directions Appendix A (Michigan)	HHS Office of Disability, Aging and Long-Term Care Policy
Michigan's Transitioning Persons from Nursing Homes to Community Living Program	Excerpt from the “Final Report of the Nursing Home Transition Demonstration Grants Case Study,” HHS Office of Disability, Aging and Long-Term Care Policy
Across the States 2002: Profiles of Long Term Care, Michigan	AARP Research Center: Health and Long Term Care
Michigan -- Person Centered Planning for People with Mental Illness, Addiction Disorders, and Developmental Disabilities	Promising Practices in Home and Community Based Services (CMS/HHS)
Long-Term and Related Care	Michigan in Brief
Michigan's Care Gap	Paraprofessional Healthcare Institute
Michigan's Nursing Facility Transition Initiative
Medicaid Eligibility	Citizen's Reseach Council of Michigan
State Activities: Michigan	National Clearinghouse on the Direct Care Worforce
Long Term Care Portal	State of Michigan
Rationing Long-Term Care: Michigan's Home and Community-Based Waiver Program	MSU Institute for Public Policy Research and Institute for Health Care Studies
Home and Community-Based Services for Older People and Younger Adults with Physical Disabilities in Michigan	Urban Institute
Dying Before Their Time Task Force	Detroit Area Agency on Aging

Assisted Living

Article/Web Page	Source / Sponsoring Organization
Assuring Quality in Assisted Living: Guidelines for Federal and State Policy, State Regulations, and Operations. A Report To The U.S. Senate Special Committee On Aging From The Assisted Living Workgroup (April 2003)	American Association of Homes and Services to the Aging
Assisted Living State Regulatory Review 2004	National Center foAssisted Living
Facts and Trends: The Assisted Living Sourcebook 2001	same

"Money Follows the Person" /Consumer-Directed Care

Article/Web Page	Source / Sponsoring Organization
August 17, 2004 Letter to State Medicaid Directors	Centers for Medicaid and Medicare Services
Consumer-Directed Health Care: How Well Does It Work?	National Council on Disability
PERSONAL ASSISTANCE SERVICES "CASH AND COUNSELING" DEMONSTRATION/EVALUATION	HHS Office of Disability, Aging and Long-Term Care Policy
Money Follows the Person and Balancing Long-Term Care Systems: State Examples	Centers for Medicaid and Medicare Services

Person Centered Planning

Article/Web Page
Source / Sponsoring Organization

People with Disabilities - Person Centered Planning Indiana Families and Social Services Administration

INDEPENDENT CHOICES: A National Symposium on Consumer-Direction and Self-Determination for the Elderly and Persons with Disabilities (June 2001) U.S. Department of Health and Human Services

Person-Centered Planning
Revised Policy Practice Guideline (pdf)
Michigan Department of Community Health, Mental Health division

The Ethical and Empirical Basis for
Consumer-Directed Care for the Frail Elderly: A
Guide to State Policy Makers Florida Policy Exchange Center for Aging

Home and Community Based Services

Article/Web Page	Source / Sponsoring Organization
A Compendium of HHS Technical Assistance Activities Related to the Administration's Community- Integration Initiative	U.S. Department of Health and Human Services Members of the New Freedom Initiative Workgroup March 21, 2002 (Revised May 6, 2002)
Report of the South Carolina Home and Community Based Services Task Force (August 31, 2001)	The South Carolina Developmental Disabilities Council
Enhancing Community Based Services: Phase One of Massachusett's Plan	Executive Office of Health and Human Services Executive Office Administration & Finance Executive Office of Elder Affairs
Cost-Effectiveness of Home and Community-Based Long-Term Care Services	Office of the Assistant Secretary for Planning and Evaluation , U.S. Department of Health and Human services (HHS)
Family Caregivers on the Job: Moving Beyond ADLs and IADLs. (book review)	United Hospital Fund
Circle of Medicaid-Eligible Caregivers Broadens	Provider Magazine
Characteristics of Patients Receiving Home Care Physician Services: Focus on Depression (poster, Powerpoint format)	Visiting Physicians Association
Clearinghouse for Community Living Exchange Collaboration	Community Living Exchange Collaborative
Reconfiguring the Long-Term Care Delivery System	National Conference of State Legislatures

Single Point of Entry

Article/Web Page	Source / Sponsoring Organization
The Case for Single Point of Entry	Canada Research Network
What is a Single Point of Entry?	Ohio Legal Rights Service
Nevada Single Point of Entry	Nevada Division for Aging Services
Long-Term Care: A Single Point of Entry for Three Populations	Legislative Reference Bureau, State Capitol Honolulu, Hawaii
Colorado -- Simplified Access to Nursing Home Alternatives	Promising Practices in Home and Community Based Services (CMS/HHS)
Wisconsin – Resource Centers Offering Access to Services and Comprehensive Information	same as above
New Jersey-- Single Access Point for Information on All Services for Older People	sames as above
Real Choices	Hawaii SPE web site
Review of IT Systems for Single Point of Entry	Clearing House for the Community Living Exchange Collaborative
Aging and Disability Resource Centers	Family Care: Options for Long Term Care (Wisconsin)

Long Term Care Insurance

Article/Web Page	Source / Sponsoring Organization
The Promise and the Reality of Long-Term Care Insurance	National Health Policy Forum
Testimony before the Subcommittee on Health of the House Committee on Ways and Means Hearing on Issues Relating to Long-Term Care	Statement of Mark R. Meiners, Ph.D., Gearoge Mason University

Quality Improvement

Article/Web Page	Source / Sponsoring Organization
Quality Indicators for Assessing Care of Vulnerable Elders (ACOVE)	American College of Physicians
Improving the Quality of Long Term Care	National Academies Press
Long Term Care Online Workshops ("User Liaison Program")	Agency for Healthcare Research and Quality

Workforce Development

Article/Web Page	Source / Sponsoring Organization
Who Will Care for Us? Addressing the Long-Term Care Workforce Crisis	Urban Institute
Direct-care health workers: The unnecessary crisis in long-term care	National Clearinghouse on the Direct Care Workforce
Survey of Nurses 2004 Data	Michigan Center for Nursing
Michigan Health Workforce: Highlights (Download the full version by clicking here.)	Health Resources and Services Administration
The Public Health Workforce Development Initiative	Center for Disease Control and Prevention
Measuring the Years: State Aging Trends and Indicators	National Governors Association
Frontline Workers in Long Term Care	HHS Office of Disability, Aging, and Long-Term Care Policy
Staff Turnover Has High Price for Long-Term Care	Better Jobs Better Care
National Conference Series on Quality Health Care for Culturally Diverse Populations	Diversity Rx
Health Care Workforce Development in Michigan: Final Report	Michigan Department of Labor and Economic Growth
Chart on State Long Term Care Workforce Initiatives	National Governors Association
Linking Payment to Long-Term Care Quality: Can Direct Care Staffing Measures Build the Foundation?	Better Jobs Better Care

Chronic and Preventive Care

Article/Web Page	Source / Sponsoring Organization
Medicaid Disease Management Initiative	Center for Health Care Strategies

Commentary

Article/Web Page	Source / Sponsoring Organization
Long-Term Care: Who Should Pay?	Sage Cross Roads
Resolution to End Institutionalism in Long Term Care and Support Home and Community Based Services	United Spinal Association

If you have any suggestions to add to this page, please e-mail them to the project manager.

Article/Web Page	Source / Sponsoring Organization
Promising Practices in Long Term Care Systems Reform: Wisconsin Family Care	U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services Disabled and Elderly Health Programs Division
Promising Practices in Long Term Care Systems Reform: Oregon’s Home and Community Based Services System	same
Promising Practices in Long Term Care Systems Reform: Vermont’s Home and Community Based Service System	same
Indiana Long Term Care Insurance Program	Bureau of Aging and In-Home Services (Indiana)
State Long-Term Care: Recent Developments and Policy Directions	National Conference of State Legislatures
Progress Report: Quality of Life Evaluation of People with Developmental DisabilitiesMoving from Developmental Centers into the Community (Year 1); (Year 3);(California)	Center for Outcome Analysis (James Conroy)
Comparison of Health Care Services in a Congregate Care Setting and in Supported Living Arrangements in Oklahoma	same
Executive Summary The Coffelt Longitudinal Study: The Results of Four Years of Movement From Institution to Community Final Report (Number 19) Of the 5-Year Coffelt Quality Tracking Project California Department of Developmental Services	same
Initial Outcomes of Community Placement For the People Who Moved From Stockley Center (Delaware)	same
New York State Partnership for Long Term Care
Ohio Commission to Reform Medicaid

Article/Web Page	Source / Sponsoring Organization
People with Disabilities - Person Centered Planning	Indiana Families and Social Services Administration
INDEPENDENT CHOICES: A National Symposium on Consumer-Direction and Self-Determination for the Elderly and Persons with Disabilities (June 2001)	U.S. Department of Health and Human Services
Person-Centered Planning Revised Policy Practice Guideline (pdf)	Michigan Department of Community Health, Mental Health division
The Ethical and Empirical Basis for Consumer-Directed Care for the Frail Elderly: A Guide to State Policy Makers	Florida Policy Exchange Center for Aging